Appendix (Quick Reference Guide)

Regional genetics centers

Advice about referral pathways to clinical genetics is available from each of the Regional Genetics Centres.

ECOG/WHO Performance Status Scale

Grade ECOG/WHO Performance Status
0 Fully active, able to carry on all pre-disease performance without restriction
1
Restricted in physically strenuous activity but ambulatory and able to carry work of a light or sedentary nature, e.g., light house work, office work
2 Ambulatory and capable of all self-care but unable to carry out any work activities; up and about more than 50% of waking hours
3 Capable of only limited self-care; confined to bed or chair more than 50% of waking hours
4 Completely disabled; cannot carry on any self-care; totally confined to bed or chair
5 Dead